We had a whole slew of errands to get through this morning and it’s not always easy to make a lot of stops with Brian in tow as transitions are very tricky for him. He started fussing after the third stop so like any great Mom, I bribed him and his brother with some fast food […]
It’s hard to explain Brian’s language capabilities to people who don’t know him or know autism. You can’t hold a conversation with him very often and he usually can’t answer most questions. The professionals label him “functionally nonverbal”, as he has a huge vocabulary of words but he doesn’t communicate with them. However, he […]
As it goes with these ugly truth posts, I wrote this in an emotional fever. Not even going back to edit it. And then it sat in my drafts, me too scared to hit “Publish”, too scared to really share the emotions that go with this gig. Me going back and rereading it over and over again- can I share this? Can I put myself out there? And then I always get that nagging thought- “You are not alone. There’s so many families out there in this same exact position. 1 in freaking 45 families according to the newest data. Other people need to know they are not alone too. That’s why you started blogging.” So here it is. Straight from my diary.
Brian started his first day of school on Monday. First day of school with new staff, new programming, and a new school. We did all the pre-school work such as visits to the classroom, working with the new staff during ESY (Extended School Year) to acclimate to them, updating my “Brian Manual” that I pass […]
In the field of special needs and occupational therapy we hear the term, “learned helplessness” a lot. Learned helplessness happens when parents or caregivers assume that their child can not be successful at something so they help them, because they love them and they care for them and they want life to be easy for […]