I’m not a saint. I get stressed too. There are those days where I yell too much, wish bedtime to appear, and just want to run away and hide in a secluded place.
Not the most glorious of topics. But a very really look of what it’s like to live with a child on the spectrum, particularly those who are categorized in the “moderate-to-severe” side of the spectrum, like our Brian.
According to Autism Action Partnership, the cost of therapies and treatments for a child with autism can exceed $40,000 to $60,000 per year. The lifetime cost of raising a child with autism is $3.2 million a year. A big majority of autism treatments are not covered by insurance. Families are caught between a rock and a hard place as they work to provide for their children but without any support or quality child care to help them maintain their full-time jobs.
Tomorrow Brian will turn ten. My baby will be ten. Birthdays can be bittersweet as we reflect on the past and wonder about the uncertainty of the future.
My goal every school year is to make Brian’s techs and his teachers my friends. When we are friends, I know what is going on with my child and I know that he is safe.
Surrounded by 21 family members, he still disappeared.
I lived my worst fear for thirty seconds.
Tomorrow marks the beginning of Autism Awareness Month. I’ve already told you that the newest numbers (from four-year-old data) from the CDC are 1 in 68 children being diagnosed on the spectrum. There are other numbers that people need to know though. Roughly half, or 48%, of children with an ASD attempt to elope from a […]
So why did I break out in tears when the interim special education director asked me the question, “What are your hopes and dreams for Brian next year?”
Those are the perfect imprints of my child’s teeth on his hand. This was the result of him feeling frustrated about not knowing what was next in the morning routine. This is why I will not be quiet and smile and say that autism is a blessing. This is why I say that I would […]
Things have been really good. So good that Brian has attended things like Colin’s gig and a hockey game with very little meltdown behavior. In fact he danced the night away at Colin’s gig. And his brother and cousin used the noise-cancelling headphones way more than he needed to at the hockey game. He actually […]